Thursday, 30 October 2014

About Lyme Voices

Lyme Voices UK  has been created for Lyme and other tick-borne disease patients and their family and friends to show their support for further research, treatment, and awareness of Lyme disease in the UK. 

A group of hard working campaigners is meeting with MPs and health officials at Westminster in November (* date & details to be confirmed* ) and there are many patients who would like to attend the meeting but are too ill do to so.  The aim of this page is to serve as an outlet for them to add their names, comments and to share their stories and show their support. 

Hopefully we can show that Lyme disease is not an obscure, rare disease that only affects a small group of people, but that it is a growing problem in the UK, and globally, and there are many Lyme patients, and their families, who have had their lives destroyed by this illness who would like to see better testing and better treatment for the disease.

Please click on the "Hear My Voice" tab at the top of the page to add your comment there and to speak up for increased awareness of Lyme disease and tick-borne infections.  

*As the date is soon, but not yet confirmed, please 'sign' ASAP*

Please note this is intended as a petition-like comments section - we would love to get as many comments as possible to show the support for increasing awareness, and improving research, diagnosis, and treatment for Lyme disease.  We would encourage anyone affected by the illness - patient, family, friends - to add their name to show their support.

As it is open for comment, there is the opportunity to add a little more information.  Please see the (very rough) guidelines on that page.

If you would like to share your Lyme story in more detail, please click on the tab at the top of the page "Share my story".   Please follow the guidelines there too, these should hopefully make collecting and presenting information a bit simpler.

Whether or not you choose to share a more detailed story, please still add your name to the 'petition' comments section and let any friends or family who have been affected directly or indirectly know they can add their names in support too.

Hopefully the hard work that has gone into organising this meeting will be rewarded and we can move forward in the UK with regard to treating Lyme disease and other tick-borne diseases.

Thank you!